I am so very sorry about your son’s diagnosis. We are with you here. You and your family are in our prayers tonight. God bless you.So, I’ve had beverages and I’m in a mood. I’ve been thru the ringer in my life (no pity party bc my life wasn’t all that bad) most of it was due to my own actions. But over the past decade + I’ve strived to be the best that I can be for my family and myself.
I’m struggling with comprehending that my only boy and the only one I can have has Duchenne muscular dystrophy. I’m really going thru it over the past year. I just don’t have the feels to really elaborate. Just know that the common problems at work or at home aren’t really that important when you come to the realization that you will bury your only son. I just don’t know how to feel. Everything hurts and it’s been a long time. I just want to know what I’ve done wrong. I know that it isn’t logical but darn it it’s how I feel. I haven’t talked about it for about it other than to tcuDoc since I got the news. I just don’t scheissing understand. Why not me?
I’m not asking for answers bc there are none. I met my soulmate and we made a life together. It just flat out hurts.
Imagine praying for a tumor or a heart problem only to find out that it’s a disease that is incurable (at this time) and that he isn’t eligible for gene therapy due to his rare mutation deletion and other than steroids there is little treatment.
Sorry to dampen the mood, but man. I’ve really been hurting