• The KillerFrogs

Has anyone seen my specialty plates?

TCURiggs

Active Member
And I'd just like to add one more thing about Ron: he's incredibly tough and has handled all of this bullship amazingly. Dude never complains and doesn't even like to talk about the poor hand they've been dealt. We've got another bad health/medical situation in our group, and Ron would much rather ask about that whole thing than talk about his ordeal. Like I said, he's a stud.
 

Ron Swanson

Full Member
Riggs pretty much summed it up. I’ll add...

At first we thought a stem cell transplant was imminent (in addition to the radiation) but after more tests (no bone marrow involvement and only 2 lesions) and seeing my initial response to the radiation, they have no plans to put me through that and expect me to make a full recovery with just radiation. They said the leg neuropathy will slowly start to heal itself a couple weeks after my radiation ended (so in about a week) and I should most likely be back to 100% within 6 months.

It’s a little tricky because there is always a good chance it comes back down the line somewhere, but the good news is that there is a treatment for it so they will be able to take care of it again if/when it does come back.

As far as my son goes...

Gibson has to have a skull surgery to repair a condition called metopic craniosynostosis. Basically the front two plates in his skull fused together early, which is what is creating that ridge up and down his forehead. They will do the surgery in early July. They have to cut open the suture (fused plates) and then he will have to wear a helmet for five months to shape his head. They said his head and face will look completely normal when it’s all said and done.

The surgery is low risk and fairly simple (at least that’s how they refer to it, but they are cutting his skull open). The surgeons doing the procedure are experts in this particular surgery and have a pretty incredible resume. It was a little worrisome at first, but we feel good about it now.

Here is a link to a quick article and video about the condition and surgery...

http://www.childrenshospital.org/co...onditions/m/metopic-synostosis-trigonocephaly

I’m not sure if y’all saw Talor and my exchange on the Front Porch thread, but he pointed out the ridge on Gibson’s forehead in a picture I posted and I told him the doctors said it was normal. Well I had been pointing it out to the docs and nurses since the day he was born, asking if that was normal, and they all assured me it was. Well finally after his 2nd visit to his pediatrician where we brought it up, she finally called us and said she had been reading up on it and thinks we should look into it and referred us to a specialist.

Another ship deal, but we are just happy it’s fixable. I tell you what, we feel lucky to be living right next to the med center where we have super-specialists for every niche health situation and surgery imaginable. It’s not something I thought a lot about for my first 35 years of life, but it sure has come in handy lately. My wife and I have had a lot thrown at us over the last 2.5 years, but it has all been fixable. No deaths or long term physical or mental handicaps, and for that we feel lucky.
 

netty2424

Full Member
Riggs pretty much summed it up. I’ll add...

At first we thought a stem cell transplant was imminent (in addition to the radiation) but after more tests (no bone marrow involvement and only 2 lesions) and seeing my initial response to the radiation, they have no plans to put me through that and expect me to make a full recovery with just radiation. They said the leg neuropathy will slowly start to heal itself a couple weeks after my radiation ended (so in about a week) and I should most likely be back to 100% within 6 months.

It’s a little tricky because there is always a good chance it comes back down the line somewhere, but the good news is that there is a treatment for it so they will be able to take care of it again if/when it does come back.

As far as my son goes...

Gibson has to have a skull surgery to repair a condition called metopic craniosynostosis. Basically the front two plates in his skull fused together early, which is what is creating that ridge up and down his forehead. They will do the surgery in early July. They have to cut open the suture (fused plates) and then he will have to wear a helmet for five months to shape his head. They said his head and face will look completely normal when it’s all said and done.

The surgery is low risk and fairly simple (at least that’s how they refer to it, but they are cutting his skull open). The surgeons doing the procedure are experts in this particular surgery and have a pretty incredible resume. It was a little worrisome at first, but we feel good about it now.

Here is a link to a quick article and video about the condition and surgery...

http://www.childrenshospital.org/co...onditions/m/metopic-synostosis-trigonocephaly

I’m not sure if y’all saw Talor and my exchange on the Front Porch thread, but he pointed out the ridge on Gibson’s forehead in a picture I posted and I told him the doctors said it was normal. Well I had been pointing it out to the docs and nurses since the day he was born, asking if that was normal, and they all assured me it was. Well finally after his 2nd visit to his pediatrician where we brought it up, she finally called us and said she had been reading up on it and thinks we should look into it and referred us to a specialist.

Another ship deal, but we are just happy it’s fixable. I tell you what, we feel lucky to be living right next to the med center where we have super-specialists for every niche health situation and surgery imaginable. It’s not something I thought a lot about for my first 35 years of life, but it sure has come in handy lately. My wife and I have had a lot thrown at us over the last 2.5 years, but it has all been fixable. No deaths or long term physical or mental handicaps, and for that we feel lucky.
No one wants to see their kiddos go through that, but you’ve been through it before and while it may not make it any less unnerving, at least you have a better idea of what to expect. Hopefully there’s a little bit of comfort in that.

Sounds like you’ve got a great outlook on it.

Silver lining, hopefully you’re just getting all of life’s tough stuff out of the way early!

And Talor is asshoe. (kidding. kinda.)
 

HFrog1999

Member
How in the world do you not know who Alex Jones is?

tenor.gif
 

netty2424

Full Member
Watched the E60 on Alex Smith on ESPN. Amazing story.
Piece of advice - don't be eating anything while they're showing his leg after each surgery. :eek:
Saw that as well. Pretty much forgot about his leg injury, and him. Out of sight, out of mind I suppose.

But wow, what an awful situation that ended up to be.
 
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